Serving
Individuals In the Deaf Native American Community
Presenters:
Carleen Anderson, Mark Azure, Alan Cartwright, Dick
Corbridge, Tupper Dunbar, Eugene Edwin, and John
Evans
WEDNESDAY,
April 4, 2001
>> Good morning. This is the session on working
with people who are Deaf Native Americans, so if
that's where you want to be, you are in the right
place. My name is Kathy West-Evans. I am with Region
X RSA Seattle. We work with the four regions of
Alaska, Idaho, Washington and Oregon, and my co
planner of the session Dan just flew in and walked
in the room. So thanks for being here, Dan. (laughter)
it's a long flight from Alaska. It's very exciting
to be here and really exciting to see all of you
interested in this very, very important topic. We
have, as of a few minutes ago nearly 200 people
registered for the northwest conference from about
ten states and the Virgin Islands. So we are very
excited to have you here sharing in this important
information. We have built in time for networking
and just getting to know each other and learning
from each other and supporting each other. That's
what it's all about, the opportunities to learn
what we are doing in several different areas. This
morning we have a very dynamic group of people and
it's always very interesting working were people
who are Deaf and people who are Native American.
A lot of similarities, and it shows in the way planning
happens and the saying of it will happen when it
happens, just be flexible. So that's how we have
kind of gone with the session. We are going to start
off by having Dick Corbridge. He is my boss, really
my team member in Seattle, and he has been one of
the drivers of developing Native American programs
on reservations, not one of the drivers, the driver,
working with Native people and setting up VR programs
on the reservations and he will talk to you this
morning about the programs, where they are, where
they are expanding to and how we can work together.
And then Carleen Anderson, my co-worker from Seattle,
as well, and John Evans, another partner, as well
are going to talk about the similarities of Deaf
and Native culture. So then we are going to go into
some time with a wonderful friend Tupper, who is
going to talk about language and similarities. And
then we will introduce the afternoon team. We are
very dynamic and kind of flowing here.
(laughter)
>> Welcome.
I'd like to introduce myself. My name is Dan La
Brosse, and I work for the state of Alaska, and
I'm trying to follow the interpreter a little, and
I'm a northern region specialist in Deafness. I
cover the whole northern part of the state of Alaska
which is quite a bit bigger than the state of Texas,
so I have one of the biggest regions in the country
so because of that region I work with a lot of Native
American folks. I helped establish two programs
this past year one in Nome, and I worked with some
of the speakers here to have the intertribal Deaf
conference in Fairbanks last summer that was attended
by over 250 people from all over the country and
Canada. It was a very successful conference, this
afternoon we will have several members from several
board members from the tribal conference presenting
the first one is Mark Azure who comes from Oregon
here, and he is going to be working with the Vice
President of the Board of Directors of the Tribal
Conference, Eugene Edwin, who comes from Fairbanks
and was born in a village but came to school here
in Vancouver. He has a very interesting background.
Also doing the presentation with these guys is going
to be Alan Cartwright who is the director of the
Deaf and Hard of Hearing Center in Anchorage and
a colleague of mine in Alaska and very well experienced
working with the Native American community, not
only in this country but other countries like Ecuador
and Nepal. So that's what we have lined up for this
afternoon.
>> Get
comfortable, enjoy the experience. Feel free to
ask questions, and we are just going to go with
what we are going to go with. Here is Dick Corbridge
from Seattle RSA.
>> Thank
you very much for the planning committee for having
the foresight to establish this track, this very
important conference. As Kathy West-Evans mentioned
the Seattle region office of rehabilitation services
administration, your federal partner normally is
a dynamic office. We have a self-starting team and
you will have met Kathy and Carleen, and you know
them to be dynamic people. I'm kind of the plodder
that kind of hangs behind and picks up the pieces.
So we work like an inverted triangle, and it's always
inverting so we never know who is on top. Leadership
evolves from all levels in our office.
I'd
like to introduce you to a very important part of
the Rehabilitation Act. Are you familiar with the
Rehab Act? Who is familiar with the Rehab Act? Good.
Most of you. Okay. The Rehabilitation Act is an
old act dating back into the 1920s. For a lot of
years, the primary funding went to the state Vocational
Rehabilitation agency. And that continues today.
The state Vocational Rehab agencies are really the
center fold of the Rehabilitation Act.
You have
two documents that I -- we passed out that I'd like
to refer to. One is an outline of the points I am
going to try to make, and the second one is a listing
of all of the existing tribal Vocational Rehabilitation
agencies in the country. They are organized by state,
and you will find them as you leave through to be
represented in 22 states in the country.
In 1978
it says -- in 1978 the Navajo Tribal Group said
hey we are not getting much services from the state
VR system. We would like to help you write section
130 into the Act. That will provide funds so that
Tribal Governments can have their own Vocational
Rehabilitation agency. So that was done, and from
'78 to 1986 the Navajo Nation had the only Voc Rehab
program run by the Tribal Government and funded
under the act. In 1986 they discovered -- the congress
discovered that, hey, this Navajo thing is working
pretty well. Let's open this thing up to the rest
of the Tribal Governments. So they opened up the
funding, and that year we had three additional Tribal
Governments apply and were funded. Now we have 65
tribal VR programs. What are they doing? They are
providing Vocational Rehab services in a different
sort of way. Based on the foundation of the state
Voc Rehab process he have they have brought the
culture of the community into the system. The culture
means a lot in Native American communities. As you
know, it means a lot in the Deaf community. Culture
often drives who we are and who we become. We are
finding that Native culture various with the number
of Tribal Governments and communities there are.
Surprise. Surprise. So the Voc Rehab program in
tribal communities varies with the community in
which it's being administered. And we are helping
that -- we are facilitating that action by helping
to interpret the act as broadly as we possibly can.
I'll give you an example, and let's go north to
Alaska. That's a very important part of our Native
American rehab community, because it has the most
programs of any state in the country. It has nine
of them. And for the first time in the history of
the state, Vocational Rehabilitation services are
available almost throughout the state. There are
a couple of blank spots we are trying to fill for
the first time. Because the state program has really
become -- has became really an urban program, and
that's important to know, because the tribal program
becomes primarily a rural and remote kind of program.
And for those of you who are curious about employment
in tribal communities in villages where the Voc
Rehab counselors have to travel by snow machine
to get there, what kind of work exists? Well, a
few years ago we helped Alaska think through employment
in terms of the community where it exists, and so
what? People who are living on subsistency economies
are employed to survive. So we define employment
by -- not by a paycheck or not by the number of
hours worked on the job, we define employment by
the function that it provides to the benefit of
the community. So you will find a lot of self-employment
opportunities developing in our rural and remote
Native VR programs. Of course the state's using
the same concept. So Alaska is quite different from
the southern 48, and I believe it's important that
we understand that the Rehab Act is so flexible
it allows for that variation without confusing about
what it wrote.
So in
2001 we have nine tribal VR programs serving well
over a hundred villages. Well over a hundred villages.
One grant of ours at Bristol Bay I think serves
something like 32 villages throughout the huge Bristol
Bay community, which is only available and accessible
by a float plane or swimming or boating or whatever.
And when the counselors go out to meet with people
with disabilities out there, they don't know when
they are coming back. They plan to come back tomorrow,
but the weather can set in, and, guess what, they
will be there for two or three days waiting for
the weather to break. It's a different kind of rehabilitation.
The reason I give you this experience is because
that's the kind of Voc Rehab definition that we
are applying in tribal communities. A little more
about that in a moment, and please watch my time
because I don't watch it very well. I don't watch
it well because when I get into this topic, I really
kind of have a lot to talk about because it's an
exciting -- it's a very exciting topic.
We have
several consortia you will find in the listing where
one tribe serves other tribal communities and other
reservations. So we have 65 grants out there, but
we are covering 91 reservations and villages --
or reservations, plus the villages in Alaska. So
we really have a broad sweep at this point in time.
You may be interested in how this program is funded.
When congress appropriates money to the state VR
program, we grab from the top and say, "okay. Put
this in the Native American Voc Rehab program, and
then distribute the money to the states." so any
-- that encourages the state VR agencies to promote
partnershipping with their tribal communities because
they benefit by bringing more rehab dollars into
the state, and that strategy has worked really,
really well. Because the state programs now are
sharing cases with our tribal VR programs and each
are learning the value of each other, a culture,
plus the rehab technology that the states have had
80 years to develop. The best of the best is coming
through. Some of the tribal programs don't want
to adopt some of the state practices because they
are too bureaucratic. So that's okay. Because we
get into self-governments, and the real question
is: why is this working so well? And the real answer
is: no surprise, because they are running the program
for their own communities. They are hiring primarily
their own Native people to be Voc Rehab counselors.
So people who are networked in the culture, in the
community are the ones who are delivering services
to their neighbors. With that comes a lot of problems
about family members serving family members and
all that kind of stuff, because there is a lot of
-- there is a lot of very close-knitness in many
tribal villages. So there is a lot of accommodations
that have to be made on the tribal VR agencies'
staff's part.
A major
component of the program, and one of the reasons
that I believe it's working so well is the recognition
that spirituality is a key element of Native culture.
Spirituality varies, but at the core, it's omnipresent.
With spirituality comes an opportunity for people
to fully participate and understand the program
through the eyes and through the vision of the tribal
Voc Rehab counselors. These people are -- those
counselors are really getting challenged. It's a
very, very difficult program when you start applying
it in different cultures by the people themselves
who are not trained in Vocational Rehabilitation.
So the burden in the training falls on us. The burden
of training falls on the state VR agencies to partner
up with their tribal partners and do joint training.
We funded training programs throughout the country
that are available to our tribal counselors. Many
of our counselors have Bachelor's degrees. Carleen
did research about four years ago asking what kind
of degrees we are looking at, and over half had
a Bachelor, a Master's or a Ph.D., but under --
but also a half did not have a Bachelor's degree.
So we have many, many mothers who have children
and families who are themselves middle-aged who
are challenging themselves as Voc Rehab counselors.
They are learning, but that is the strength of the
program. The mothers who want better for their children
than has been available before.
Vocational
Rehab is a program you may have been introduced
to in a variety of ways. It's a program that is
different, very different in tribal communities
in that most tribal cultures did not have a concept
of the language of disability. The term "disability"
was offensive to many of them, is offensive to some
of them. One of the more humbling experiences of
my life was sitting across a table with a tribal
leader talking about his Voc Rehab program and I
kept talking about people with disabilities, and
he put his hands flat on the table with a crescendo
-- stop using that word! Whoa. The Rehab Act talks
about people with disabilities. That's who we serve.
He said not in this community. So what can we use
to talk, sir? He said, "I don't care what you use,
but use something that we understand." How about
people with special needs? That will work. Okay.
We are on our way again. Simple, hey. Who has special
needs? How about the substance abusers? They have
special needs. Damn right.
Excuse
me. I don't know how you spelled that (laughter)
so a lot of our clients have multiple disabilities
including substance abuse, and they are very, very
difficult clients. Certainly difficult because the
state system had such a difficult time trying to
serve the population. They understand that it really
takes a special nature and preparation of the tribal
member to do this program. Native healing is definitely
a part of the Voc Rehab services. Native healing
in sweats. Native healing in prayer, and Native
healing however is applied are appropriate services
in this program. And it's a key -- it's a center
for many people. Family services are participating.
Families of all kinds participate. Significant others
participate and give the support that their friend
or family member with a disability needs to be successful.
Native communities have a lot of services available
within them. Education, treatment, health care,
public assistance. Social Security, again, Native
healing, school-to-work -- all that stuff exists
in many of the Native communities. So our VR program
is finding its way into school-to-work transition.
Into helping people that are held up in penitentiaries
to return to their communities. Helping folks who
are institutionalized for public health -- or mental
health reasons -- helping them return to their communities,
and as the leaders of the Tribal Governments watch
this program emerge, they see its comprehensive
nature, that it is not finished until it has helped
the folks find employment and suitably adjust to
it. We don't have a big drive on outcomes like some
of the state programs have. Outcomes are important,
but we don't underscore -- we are not totally driven
by that. We are driven mostly by seeing sure the
person is suitably rehabbed before we make the closure.
Just
a brief -- a brief moment on the -- again, on the
state tribal relationships. Again, the state VR,
and the tribal VR are serving the same -- some of
the same clients. One of my tribal programs or tribal
programs in Alaska was started on that. It was all
of the cases were going to be tribal and state partnershipping.
Well, over the years, I was going to drop down now
to maybe 50 percent are. I don't know what the percentage
is, but earlier tribal VR agencies were improved
because of the partnershipping with the state VR
systems, and then as we weaned the tribal programs
away from all of the bureaucracy of the state system
and drug the best of the best out, that's what you
are seeing in tribal VR programs now is the best
of the best in a culturally appropriate approach.
Economic development is going on. We have a lot
of new businesses started with Voc Rehab funding,
helping individuals start new businesses. We have
transportation systems that have started. We have
convenience stores that have been started. We have
recycling centers that have been started with Voc
Rehab Activity with consumers of Voc Rehab participating
in self-employment ventures, and the agency developing
opportunities for work hardening, work testing,
and work experience.
The outcomes
-- and I told you we are not driven by numbers,
but in the year 2000 -- the year 2000 -- fiscal
year 2000, 12 months, we served, 4178 people with
disabilities. 4178. That's what that means. 963
of those people were successfully assisted into
employment and closed rehab. 963. This was 55 programs
reporting. That is a successful outcome rate of
62 percent, which means once you help the person
write a rehab plan and start the plan, 62 percent
will be successful. It doesn't seem too high. It's
the same exact rate as the state VR agencies across
the country experience. The value in this program
is not only those outcomes, but the assistance in
life that the 38 percent that didn't achieve a rehabilitation
outcome receive from our cultural VR program. My
last comment to you is a -- is one that's close
to this conference. In a very quick survey I took
yesterday, randomly selecting the programs to talk
with, I think there were 11 programs I talked with.
How many of your clients have hearing impairments
or Deaf? The programs average three to four. One
program said 50. Whoa. 50. That was an Oklahoma
program. Yes, most of those are hearing impaired,
not Deaf, and we are able to work with them. When
they are totally Deaf we have a hard time with that
so we partner with a state agency.
I think
that represents the condition of the programs today.
I think that's a good representation of what you
would find if you talked with all 65 programs. I
don't know think you would find too many of them
that would say 50. I think that's an estimate. I
think most of them would be three or four. There
is a lot of work to be done, and I really salute
again the planners of this conference to bring this
track forward, to allow us to spend some time on
it, and since there are so many states here -- I
don't know if there are that many states represented
in this group, but look at that listing of the tribal
VR programs for your state. See if there is any
way you can interface with them and help them to
access resources, to access the network. I'm in
touch with them, -- Carleen and I are in touch with
them almost weekly. We have a lot of people -- a
lot of the programs call in once or twice a week,
and we do case staffings over the phone, and so
they are going to bring the whole issue -- and there
is a national teleconference that my team partners
in Washington, Suzanne Tillman and Pamela Martin
are the team partners in the Washington, D.C. office,
and they have a monthly teleconference with all
of these programs. So we keep raising the issues.
We would love to see a high energy activity interfacing
the two programs. I've recommended and suggested
that the intertribal council of the Deaf make an
application for a special d program this year --
special demonstration program this year to try to
help that interaction take on more results. Thank
you, and I know I'm over, but it's as small as I
could say on a big topic. (applause)
>> Great
to have this overhead turned off now. I was just
noticing now how John removed the wire around the
microphone stand. He took and lifted up the stand
and removed it on the bottom, and I was thinking
about it, and I thought well, I need to move that
over the top. (laughter) And so I guess it's a difference
in the way that we do things, and I think that today
what we want to do is talk about some of the things
that maybe we are a little different in and also
to talk about areas that we are very similar in
with the Native culture and the Deaf culture, and
let me start by telling you who I am. I'm Carleen
Anderson, and I'm a member of the Colville confederated
tribes which is located in eastern Washington state.
On both sides of my family were fur traders, and
it's interesting to think about where we come from.
In our language when we meet someone we tell them
what our names are, and we tell them who our parents
are, and then we tell them which tribes we are from,
and in our language we greet folks by saying, "white
hust" -- "in our language that means hello, what
is in your heart? When John and I were planning
our talk, I wanted to share with folks a little
of the history of Native people in this part of
the country, and I wanted to do that because I think
that this area in particular played a big part in
all of the tribes in the northwest. This was the
area where most of the fur traders settled initially.
This is the area where both my great grandparents
came from. They came from Montreal with the Hudson's
Bay company, and came to Astoria and this area,
and both of them settled here, and as they traveled
up the Columbia River before the dams -- long before
the dams, they met my grandmothers, and in a nutshell,
that's why I'm here. And so our history talks about
very much of who we are and where we come from.
John and I talked about our lives. I was raised
a lot by my grandma in the little town in the center
of our reservation. I spent a lot of time with my
grandmas and my grandpas. My Grandpa Carson -- or
my Great Grandfather Johnny Pachett was blind, and
I remember taking him from our house outside from
our house so he could go to the bathroom, and I
can remember spending those good times with my grandparents.
I remember also when I was six years old that I
was taken to a mission boarding school, and I remember
vividly that day. I remember those feelings of alienation,
not knowing why I was there, who these people were,
and I remember we had children that came there who
spoke the language, and were punished for speaking
the language. A lot of people think this is way
old history, and it's not way old history. The first
records I see where parents were taken away from
their families and brought to boarding school was
1895, and I have seen letters from parents who wrote
to their -- to the Indian agency saying why did
you take my children? I need my children. So in
those mission boarding schools, and I was there
for seven years until I was 13, we lost our language.
We couldn't talk about our rituals. Our sweat houses
were considered pagan. Our winter Dances were considered
pagan. And so in those boarding schools many of
us -- and there were about 300 students there while
I was there -- many of us lost who we were. Many
of us lost that sense of identity of where we came
from and what was important to us.
And
I think that experience -- that experience of being
boarding -- in boarding schools is something that
we need to link together to bond our partnership,
and, John, do you want to talk about --
>> I
hoped also to open with a bit of background about
myself, and I notice that right away there is a
big difference in our presentation style. Hers is
very laid back, slow paced, and you see culturally
how her mannerisms and speaking -- that's just way
different. We are very animated very motivated I
say let's communicate. We have this going on back
and forth between the two of us, that's a big difference
between the culturing of Indian people and with
Deaf people and also east and west coast, Washington
and so forth. Chelan, Washington -- I grew up there
with three brothers and sisters who are all Deaf,
and I also went to the school for the Deaf in Vancouver,
and went to the Deaf program, and we did very well.
I mean, we just -- it was a different experience
for us in the Deaf education system. But the system
itself wasn't all that hot. I mean, it's really
more hoping for us to be in the school for the Deaf
but we were yanked out of those systems and were
placed in some place out of our home systems and
placed in some residential institution and that
was a scary experience. If you are placed in a residential
program without any knowledge or reason -- what
was the purpose of that? That was a scary experience,
but let me tell you something. I learned to love
it, and I learned that those people, those people
there -- and I shared a commonality about being
Deaf, our language, and we bonded with one another.
We became brothers and sisters, and let me tell
you I really appreciated that. That big difference
between my home family and system, which that was
my life. But I didn't know any difference or any
better. I didn't know there was another world out
there, something I could be involved in where I
grew up. And then here I was placed there, and I
wasn't the only person with this particular viewpoint
of life. I mean, there were a lot of Deaf people.
They were all placed in the residential schools,
and we became a tribe so to speak. And I mean, we
established a Deaf culture, and real culture with
common values, and we came from different background,
different families, we had different histories and
so forth. Different ways of being raised. Both positive
and negative but we shared in so many different
ways, it was amazing, and as I traveled across the
united states I see there is a lot of common experiences
and bonds we all share. The frustrations we have
had with the system both the positive and negative
things of growing up in the Deaf world, and this
-- I mean -- many denominators that -- common denominators
that we all deal with, and we see parallels that
have really made an impression on me about the commonalities
that we share with American Indian and Native cultures,
and in this presentation this morning I wanted to
be open so we can share and do a comparison and
contrast, and, with the structure that we have today,
I want to talk about how we can identify the different
issues that we have, and the next presenter that
we have is really going to make some more specific
points in a number of those issues, in service provisions,
in resources, lps and so forth, so we would really
like to put a challenge forth to the various service
providers, professions to really deal with these
particular issues that are identified because we
do have many commonalities in our respective cultures
and sometime this afternoon I think Tupper is going
to speak about the various languages, the various
sign languages, modes of communication that are
involved and the challenges we face with those,
as well. So you notice there is a different. I mean
-- she is so calm. She is so laid back (laughter)
I ain't going there. I mean -- but you can still
see that her heart is there. The emotions are still
there, and the undercurrent, and the compassion
is not lost. And so, you know what we have there
is not lost yet. There are people in the world that
are going their own way, but I really encourage
you, do not lose your culture. Maintain your roots,
and do not forget -- you know, that some of us might
be working toward the goal of breaking out of our
ruts, our molds, because we don't really know where
we have come from. So when you see people speak,
you know, you speak from the heart, and don't forget
we have got our brothers and sisters here. We don't
want to forget our brothers and sisters, we don't
want to forget our cultures, we don't want to forget
what we face and our extended family that we have
and the daily frustrations that we deal with. Maybe
some don't, but there are a number of us who do,
and don't ever for get that. Okay. Are you still
with me Tupper? You got everything that I said up
there on those captions? I hope you got it all,
right? Okay. To begin with. So you know a little
bit about my culture now. We have Deaf time. Deaf
time. Do you know what Deaf time means? I mean we
take our time -- you know, what's most important
for us is to finish our conversations you can wait
until we are done. We are going to change the schedule
because it fits us we don't fit the schedule. This
is this is very critical. That value is always there
because Deaf people feel a sense of isolation and
we see another one whether they are from Alaska
or Oregon or anywhere else, that's our networking.
Because we are out in the hearing world every day
facing all of these challenges, and here we are
with our own people, our own culture, and it's euphoria
for us. And you say we are not punctual. It's Deaf
culture, am I right or what? Now what about Native
cultures?
>> he
won't come to my place, I don't want to go there.
Okay? (laughter) we talk about family. We talk about
our extended family. We have so much alike in that
area. Any time you go to a pow wow -- and I encourage
you to go to pow wows. Any time you go to an Indian
Reservation, you will hear folks talk about their
aunties and their grandmothers and their grandfathers,
et cetera. I am going to share a little bit about
my life. I'm in recovery. I'm an alcoholic and a
drug addict in recovery, and in my using behavior,
I fell in love a number of times. And so my children
have many grandmas and grandpas, and I can remember
a friend of my daughter's crying to her mother,
"mom, how come Michelle has so many grandmas, and
I only have one or two?" (laughter) but those extended
families, those relationships aren't necessarily
by blood. They are by people who care about you.
I look at my aunties, and my aunties are folks who
would take care of me and teach me, and I'm not
related to them by blood or marriage. They are just
people who care about me, and I think that that's
a similarity that we can find in common with us
are those extended families that are so important
to all of us.
>> So
you have alcohol problems, in your culture? This
is a problem you have in your community? So do we.
>> No
--
>> Why
is that? I wonder why? I put that question to you
why is it our respective cultures appear to have
more alcohol problems per capita. What's the cause,
the etiology of that? We could end treatment programs.
That's a real hassle. Cost prohibitive. What about
our issues of confidentiality? We won't be able
to keep confidentiality because we will be sharing
with all these outsiders in the group and they will
know who I socialize with and here we go to the
same bowling alleys and so forth, we share common
friends. It's really hard to find our own separate
groups that we can open up to how about you?
>> Confidentiality
-- let's start there. I grew up on my reservation,
and I worked on my reservation or for my tribe for
many, many years, and I can remember the Indian
folks on the reservation laughing to ourselves when
we had attorneys come to work for our tribe that
said they had to create confidentiality codes so
that everybody's information would be private. Do
you know what it's like to grow up with people and
know their history from the day that you met them
until the day that they died? You have the same
thing going on in your community. Confidentiality
doesn't mean anything to us.
We all
know what our history is in the reservation community
generally. We know the good parts and we know the
ugly parts, and we know the in between parts, and
yet that's part of what makes us a community. That
bond. We have alcohol and substance abuse issues
on the reservation, and I think it would take a
whole maybe two days to talk about where that came
from and why we have that, and it would be a --
an issue of history. It would be a reason and not
an excuse for it, and I think that as we look at
those issues of drug abuse and substance abuse in
general, one of the things that happens in our community
is even -- even when I was the worst drunk and the
worst drug user, I could be, my community still
held onto me. My aunts and my uncles were hurt by
what I was doing. My family was hurt by what I was
doing. But they didn't throw me away. I was still
a part of that community, and I was still cared
for in that community. Is that what happens in your
community?
>> Quite
a bit. We have so many commonalities between us.
Let me tell you. We have a propensity to see ourselves
and our extended family environments because we
know each other very well. Now, as far as confidentiality
-- hmmm I don't know that's a hard one.
I
think it depends upon the profession itself. If
they understand the value of confidentiality, a
code of ethics confidentiality issues. Now we have
a tendency to share quite a bit of information about
one another because we are looking for one another
to succeed. How is that person doing? Did you pay
your taxes? Did you get that car? And so how is
your marriage going? Did you succeed in recovery
from dealing with your alcohol problems and we share
back and forth. Our lives, our deaths, our births
are all shared, and it's like a circle, a cycle
for us, so we want to know what's happening with
each other. When you talk about confidentiality,
that's not an easy one. In my community it's well
enough to know that the children are good, you know
when you see them grow up, and they are going to
become adults and then they are not going to have
privacy. We know a lot about each other, divorcees,
conflicts, each other's domestic violence situations,
the good, the bad, the ugly. Let me tell you. You
have to be careful. Confidentiality is a challenge,
and the important areas that we see confidentiality
are professional, interpreters, counselors, mental
health, because we have these very important, very
private issues and if the Deaf person shares it,
then you know we have got to accept ownership in
that sharing. But at the same time we have got to
maintain confidentiality and keep quiet and allow
them to keep their personal information personal,
and we will say it, it's personal. Just personal
and confidentiality rather are synonymous, so we
do share something like that. It's also kind of
interesting that our cultures face isolation. I
mean, here we have isolated from one another and
spare parts of the community and at home and work
we are the only Deaf person, and we find its a critical
mass. You know, when Deaf people get together. A
number of us, not just one all buy myself or something,
because I always face so much isolation in our respective
homes and in Alaska I can imagine it's so much worse.
In Washington we are lucky we have Seattle we have
King County, Tacoma, Vancouver, but in Washington
you know they are pretty isolated, eastern Washington,
it's pretty hard. So how do you resolve that? Do
you face the same kind of isolation? You have reservations,
but, you know, to interact with a larger community
might be kind of hard. I try to get out there and
interact with outsiders but they look down upon
me and I feel like I'm a second-class citizen at
times, and but they look down on me because I'm
Deaf they cop an attitude. Nobody looks at me eye
to eye. That's kind of sad. Do you face the same
kind of thing?
>> Very
much so, John. I think that Indian people and probably
minority people, folks from the African American
and the Latino and also the Asian community share
that kind of isolation. I think about I now work
for reach and tend RSA. I'm the only Indian in RSA,
and there are times when I feel so isolated, and
I think that our people feel that same isolation
when they are out in cities and off reservations.
Within
the reservation communities, I think that there
is a lot of interaction. There are a lot of things
that Native folks do together. We have senior programs.
We have community centers where folks gather. We
have name-givings where people come and eat together,
and we have what we call our give-aways where people
share with people in their communities by giving
things away. We have memorials. A lot of things
happen in our community that help us get together
and stay together.
There
are also the pow wows. I used to work for Western
Washington University, and one of the things that
my colleague said there -- she said that I can't
believe that no matter where you go in this country
you always run into somebody who knows somebody
you know, and I think that happens in your communities,
as well; we are a small family in a big world, and
I think that sense of who we are, that sense of
our culture -- that means so much to us.
>> now,
we have pride in our culture (laughter)
>> golly.
>> so
I mean, with our culture -- we don't want people
to change us. We don't want to be fixed. I mean,
we want you to accept us for who we are. We don't
want you to change our language. We don't want you
to change our structure. We don't want you to kill
our roots. We don't want you to remove our schools
for the Deaf. This is our culture, and we are very,
very proud of it. And you call me disabled, and
I'm not. I happen to have this glorious gene called
Deafness. And this is passed on in my family, and
I am very proud of that. So why does the society
want to fix me? Why? When I don't want to be fixed.
Leave us alone. Let us grow, and accept us for who
we are. I mean, why is that?
>> you
know, John --
>> do
you have those feelings?
>> I
have those feelings. I do. It happens every day.
I -- people want me to be something I'm not. I picked
up a book at a bookstore a couple of weeks ago because
of where I work, and not because of the people or
the office I work in, but the book is, "how to write
and speak better English." and I got that because
I find that I didn't know I talked different. I
didn't know (laughter) I didn't know that, and I
think Indian people all over the country face the
same thing. The rest of the world wants us to be
like them, and, you know, how can a fluffy, middle-aged
Indian woman raised on a reservation change at this
tender age of 25?
(laughter)
it can't happen. But, yes, the world tries to change
us. I think it comes, John, from that time when
they thought we were kind of animals, that we weren't
human. Did they think that you weren't human, too
>> oh,
that we were all animals. We actually all are animals
(laughter) they think we are, we sign. We move around.
We are like crazy people. Crazy animals.
>> sometimes
we are too. I jokingly say that sometimes I'm not
quite house broken (laughter) that I live so close
to my community that it wouldn't be too hard for
me to go back to some of those baser instincts that
folks call base but I don't think are so base. How
do we deal with that?
>> well,
I'm going to leave that to the next people over
here. I mean, those are the problem solvers back
there, okay? We are just identifying problems over
here. We are going to leave it to those people to
resolve the problems, all right? That's their respective
field, is it not? I think it's interesting that
in our culture that we deal with a lot of frustrations
and when we go to service agencies -- I mean, rehab
programs, the various programs that -- you know,
they want us to be the same. They want us to bond.
Excuse me -- we want to bond with one another because
we find we have Deaf people and those are our peers
our colleagues so in rehab services that makes sense.
So if I have a Deaf professional they know where
I'm coming from my educational barriers my frustrations
and if I'm dealing with a hearing person they look
down on me not understanding where I'm coming from.
Don't misunderstood me I know as a counselor for
a number of years the number of times, the limited
number of times that I have had a client on my caseload
-- and not because John is a great counselor --
they don't come to me because John is a great counselor
they come because I'm Deaf. He's Deaf too, all right.
Do you feel the same way back there? I mean, Deaf
counselors are popular. We get a big caseload, and
what's the reason for that? I mean; is that right?
Is it possible for the system to handle something
like that? I mean, what's wrong with hiring more
Deaf people, more people who actually have grown
up understanding the feelings, have the same experiences
in their heart so they can provide those services
for those people. Do you feel the same way in your
communities?
>> yes,
we do very much. I think that's why the Native programs
and the VR programs within the Native communities
are able to make -- how many successful rehabs?
963. That's why we are so successful in doing that
in our own communities. But we are also successful
in partnering with folks to get those successful
rehabilitations, and it's these partnerships that
we create in meetings and in sessions like this
that we bring you into our community so that you
can find out how better to serve the folks with
disabilities within our communities.
I
think Native people should be hired also within
the general agencies to provide services and to
teach people how to work with our community. How
many people went to -- have gone to social service
agencies and not been served and went away thinking
you were not served because you were just too damn
hard to serve? A lot of people. And I think that's
what's happened with your community, as well as
our community. We are just too Dang hard to serve
sometimes. We are not easy. Have you found that
to be the case, John?
>> uh-huh.
We have a lot of similarities between us. One thing
we would really like to promote and develop is training
of people that actually our clients can identify
and build a rapport with. We need that. Not just
intraculture but outside of our culture as well.
We need to have success stories. And I'm wondering
about your role as an elder. In Deaf culture, you
know our elders are the ones that hold on to our
culture and they show us about our roles. They --
rather they are our role models that we look up
to, and there are times that I look up on these
older Deaf people, as my parents, my father, my
mother. They are the ones that have known us all
of our drives as we have grown up. And they have
leadership roles, and at times those leadership
roles maybe are not the best, but -- might not be
very current, but let me tell you, this is a glorious
society that we have. Our elders pass on to our
young people -- it's very difficult, very powerful
and it's a heritage that we want but sometimes the
elders will hang on to that, they will just hang
on to it, because it's like a hierarchy in our culture
that begins on a local level and it goes up to a
state level, and then up to the national level and
then you have all this political stuff going up
to the top of the hierarchy, and there is a world
level, as well, but our elder's role are very significant,
and in Native cultures do you also have elders and
what are their roles
>> our
elders, too, are very important to our people, and
hold a very special place in our communities. We
look to them for sharing the culture. We look to
them for teaching us the language. We look to them
for direction. I would not be presumptuous to say
that I'm an elder. That's a description that someone
else would have to give me. I would not take that
description, and I think that when people look to
our elders, that's a very special -- that becomes
a very special relationship. Because it is, as John
says, a nurturing, a teaching, a bonding that takes
place between people and the folks who help us carry
on our traditions and our culture.
>> our
youth are really going about their own ways, and
they don't seem to recognize a lot of our values.
The important parts and structure of our culture
and our heritage. It seems that our youth have other
priorities now. Why is that? Do you face the same
kind of things?
>> (nods
head up and down) our children --
>> what's
happening in our society that distances us from
one another? I mean, our culture seems that we are
a number of subcultures, a strata of cultures. We
have the African American subculture within our
culture. And we have the Native culture within our
culture. And we have the gay and lesbian subcultures
within our cultures. We also have the Asian subcultures
within our larger Deaf community, and there is a
lot of -- not only striation, but discontent from
one another, and we are trying to bring one another
together, and it seems like everyone has their own
agendas and their own lives, and we are looking
at what's going on with this, and what's happening.
Are you facing the same thing?
>> I
think we are. I think that in looking at our history,
there have been attempts from this area, at least,
for 150 years to take away from our people who they
were, their identity. There was -- there were attempts
at termination, which would have taken our reservations
away from us and sent us out and away. There was
what we call relocation, which was taking Indian
people and sending them to big cities across the
country like Los Angeles and Chicago, San Francisco,
to get them away from reservations so they would
lose who they were and they would join the melting
pot, and we would become more like everyone else,
and what happened in those instances, especially
with relocation, is that when the Indians got to
the cities, they found the other Indians, and now
you see major cities with major community centers
where Native people get together.
the
issue with our youth is the same issue that you
have. How do they -- how can our children learn
who they are with all of this noise around us? The
media, the toys, the violence, the fighting one
another, the conflict, the Chinese taking our airplane,
the, the, the -- the media, the news that is going
on in front of our eyes and our being every day.
It's easy for our children not to know who they
are, and it's easy for our children not to appreciate
where they come from and to value who we are. It's
hard for them to carry those seeds. It's hard, but
it's not impossible, and I think that's where we
have to work hard is that by these relationships
that we forge with one another, that we find those
good things that we can share with our children
that hopefully they will pick up.
>> okay.
Our cultures -- I can't speak for everyone, but
we have a value of money, and we also should value
our societies -- our social structure. Our baseball
teams, our bowling teams, and the lack -- our Deaf
camps. We value our social activities, and that
perspective really is an important part of information
sharing, of bonding, of getting together, because
we work all the time and make money, and invest
and so forth -- that's a new concept for us. Let
me tell you that's a new concept. I mean Deaf people
are investing now. There hasn't been that many but
thanks to Gallaudet -- we put value within our culture,
and we are really bonding more with people and these
assets, and it's a higher value. And that's because
these Deaf people are our family. Do you feel the
same?
>> okay.
Let's dispel some myths, first, okay? I don't get
a check every month. I don't know whether there
are any tribes in the country that get a check every
month. Not all of our reservations have casinos.
There are some tribes that have casinos. Not all
of us are on welfare. A lot of us are like you folks.
We are in the trenches plugging away at it every
day. There is something, though, about money that
I think we kind of do -- or not do, I guess, would
be a better description. We haven't learned how
to bond with it generally very well (laughter)
>> same.
(laughter)
>> we
share that. It went in one hand and out the other.
I spend it right and left. The SSI checks right
at the first of the month go away. I depend upon
that government check. We are all going to be in
Seattle at the same time on Friday. The first Friday
of the month every month to get our check, the second,
third, and fourth day of the month, don't worry
we are not going to be there because the money is
gone.
>> it's
kind of like hunting and gathering. When you have
it you use it. Why put something away that you can
use? And I think that generally speaking, I guess,
for most of the people I know is our employers didn't
put money away for retirement, and we weren't able
-- if we were able to get to it -- if I could get
to it -- to hell with 62 or 65.
(laughter)
we believe that if you have it you share it and
you use it. That's something that we do in our communities,
I think, that's really vital in keeping us who we
are is sharing and giving. I alluded a while ago
to our ceremonies that we have. And I want to share
with you again a piece of my life. My mother passed
away in 1996. For the last two years of her life
she was very, very sick, and she did not want to
be in a hospital so we kept her home, and my sister
and my dad and I took turns taking care of her.
When she was getting close to the time for leaving,
she told us, "I don't want any police here, I don't
want any sirens here. When I leave I want you to
take care of me." and so when she finally drew her
last breath, we called the physician's assistant
that we knew we had her come and do whatever paper
work they had to do, and my father and my sister
drove her to the funeral home, and when it came
home -- came time for the services they picked her
up and brought her to where the services were.
As part
of our funeral ceremony, we had to wait where people
sit and talk about the person and laugh and talk,
and we have the person who has gone on with us right
there at that time. And we eat. Two times we eat
together in that period of time. We eat the evening
before and then after the services and after the
person's resting in the ground. We also honor them
for a year, and by honoring them for a year, the
person who has gone on -- we don't go to celebrations,
we don't take part in any of the activities in our
community, and we gather things in that year. We
gather things and we make things in that year. And
after that year is over with -- after that year
is over with, we have a memorial, and that memorial
is our family getting together and inviting people
to come and share with us a meal. And after that
meal is over with we sit around and pass around
pictures of the person who has left, and we do a
give-away. Everything that we gathered in that year
we give away. We give away -- we gave away towels,
pots and pans, clothes, socks, blankets, hats, gloves,
personal things from the person who went on. And
those give-aways are something that is vital to
our community. Giving away happens when there is
a naming. A child gets a new name or a person gets
an Indian name. Give-aways and meals are done at
that time. It happens when people have what we call
in this part of the country or our part of the country
a winter Dance or a Chinook Dance. Part of that
is giving and sharing Chinook. And I understand
that happens in you're community, too, giving and
sharing?
>> I
think that we have a -- interesting material bartering
system. I mean, you do something for me, I do something
for you. We scratch each other's back. We have this
interchange. I mean you know, it really takes school,
though, at times because here I'm sharing something
with you, you have got skills you can share with
me. It's not just material things but also intangible
things. Knowledge can be shared with each other.
Expectations of our culture. If you are a cultural
member, you have some knowledge. You can give advice.
You can be a counselor in rehab and so forth. In
mental health we have an exchange -- and this is
no cost -- the expectation is not that I'm going
to pay you for your skills, I'm going to pay you
for your knowledge. I mean, we are both Deaf. So
the expectation is that you share your knowledge
with us. I think that's. In rehab all the clients
-- I go bowling, and here comes my clients, and
they want counseling services. They want to be rehabilitated.
Excuse me I'm here to have some fun. I want to enjoy
myself have some fun but they pull me in. So where
is the etiquette? Where is the respect? It's not
like that. They are not insulting me and I don't
insult them back it's just a mutual explanation
we will be available for one another and we will
have that interchange of one another's knowledge.
Do you have something similar?
>> I
think that's -- the idea of giving and sharing is
different in our Native communities or as I have
seen it, and I guess now would be just as good a
time as any to tell you that I'm not an expert on
all Indians across the country. I don't know everything
that happens in this nation with Indian people or
within their cultures across this country. I can
only talk to you from what I know from my life experience.
in
my experience with giving in our community is that
when you -- when you -- when I give something away,
I'm done with it. I don't expect something in return.
I have let it go. And one of the things that RSA
has a -- such a hard time with, and the federal
government is I guess this is unethical that you
give things and apparently there is always supposed
to be reciprocation. Giving something says I'm done
with it and I don't expect you to pay me back anything.
Knowledge -- having special knowledge -- I think
our people in our community expect us to share that
knowledge when they ask for it. If you do
>> (audience
member:) if you do receive something and you try
to give back because it's part of your culture --
you receive something, is it an insult or -- so
you are not doing something incorrectly?
>> I
would have -- if I give you something and you gave
me something back, I would probably accept it, but
I would also tell you that you did not need to do
that. It's -- that -- and I guess I would feel hurt
that you would want to give me something back, because
I think it's really important for people to know
-- and I can only say this for me -- that when I
give something, it's because I wanted to give it,
and it's because I want you to have a piece of my
life.
>> (audience
member:) and not feel that you are owed?
>> you
don't owe me anything
>> (audience
member:) okay
>> and
I think that's a very, very significant difference
>> (audience
member:) giving away can also be associated with
a new birth or rebirth or a dramatic change in your
life --
>> can
you hold on for a second. We have some people using
the mike for an assistive listening device. You
need to talk into the mike so they can hear what
you are saying.
>> (audience
member:) giving away in some Native cultures can
be associated with a rebirth, a renewal, a dramatic
change in your life. You are threw with that old,
and you are making way for something new. It's kind
of like spring cleaning. Everything goes and then
you start new with a new year.
>> now,
let me tell you. We expect s si. I mean we expect
that you are going to pay for our interpreters.
You are not going to charge us a dime for them.
Let me tell you we expect that you will have service
provision free for us, and you are not going to
charge us a dime. We expect that we are going to
have our medical card, Medicaid. Our hearing aids
will be free, and you are not going to charge us
a dime. That's kind of interesting. Our expectations
are the society owes us a living. I mean, that's
a little different, and that's something that probably
needs to change and we need to change that. But
our expectations are kind of interesting. Do American
Indians have any expectations that society owes
you something?
>> well,
(laughter) I'm from the government, and I'm here
to help you (laughter) let me tell you that in Indian
country -- and I have to share some history here
-- please bear with me, and I can only again talk
for my tribe -- for those familiar with the state
of Washington, our tribes' area of being was from
the cascades over to probably the Montana border,
up into Canada, clear down to priest rapids. When
Stevens in 1855 and those years started making treaties
with tribes, what -- part of what he said -- and
let's remember that in English law, which is what
u.s. law is based in -- contracts can only be made
between equals. And Indian people did not know generally
the meeting of -- the meaning of ownership of land.
We just knew where our areas were that we traveled.
So when treaties were made and we were put on reservations
-- our reservations has 12 bands, and we didn't
necessarily get along with each other when they
put us together, either. That agreement, that executive
order or that agreement said the Colville tribes
will have this piece of land 3 million acres in
perpetuity. I looked that up in the dictionary.
You know what that means? That means forever and
forever and forever, and our chiefs and our leaders
agreed to that and not willingly.
a
year and a half went by after that agreement was
signed, and gold was discovered on the north half
of our reservation. Well, then the government said,
"oh, we changed our mind, you guys. You need to
move to this half part and stay down there because
we are opening this up to mineral exploration up
there." and they did. They took the north half of
the reservation away from us. And so perpetuity
only meant like a year and a half really (laughter)
when all of that happened, the agreements that were
made said you will have education, your welfare
will be taken care of, your health needs will be
taken care of, but you have to stay within this
reservation. This is where your people have to be.
Our people took those words seriously. We don't
expect everything to be handed to us, but we do
expect the u.s. government to keep its word. So,
yes, we do have Indian health services, yes, we
do receive some educational assistance. Yes, our
tribes run themselves and yes, within our borders
we say that we rule, but that's, in a nutshell why
we feel this way. Do you think that our people would
take commodities if they were able to go out and
hunt and fish and gather if they were able to get
what they used to get wherever they used to get
it? I don't think so. But because of all of those
things being taken away, what we got was commodity,
and what we have today are the last vestiges of
what was taken so many years ago. There was no war
here. I had somebody say, "gee, why don't you guys
just get a life? Those treaties happened years ago.
My family didn't make those treaties. Why should
I live with it?" and I said, "your constitution
of this country -- or our constitution of this country
is old. Do we not pay attention to it because it's
old?" that's why we expect some things.
>> (audience
member:) who is going to interpret for me? Will
you interpret? Something bothered me that you said
a while ago -- it bothered me that you said Deaf
people expect to get SSI. I don't think Deaf people
expect SSI. That's what we were trained and told
all our lives from the schools and teachers get
your SSI. They told us repeatedly. So I don't think
it's fair to say we expect it because we were trained
to do so, and in regards to what Carleen was just
saying about our expectations -- the government
said they were going to do it, so let's take it,
and we will use that government support to go get
our education and whatever. We were trained that
way all of our lives. So, you know what I'm saying?
>> well,
that training -- that training led to the expectation.
You know, I was taught the same things. Since I
was 18 years old they said go get your SSI, and
I said, "what? Why? You are Deaf you are qualified.
How much is it? Oh, $340 a month? Okay I'm there,
sounds good to me (laughter) every month I got that
check, and I was still a junior in high school.
So that's a lot of money for a kid my age, let me
tell you. But, you know, it's like they trained
me from cradle to grave to get everything from a
to z at the school for the Deaf so you say the white
man made promises, well, all these hearing people
with their hearing attitude made us promises. They
said oh, if you are mainstreamed in the most appropriate
environment educationally, then you can give up
your Deaf school so you can be mainstreamed and
you have the most effective schooling in those systems.
But what I see is the communication completely disintegrated
and there wasn't qualified people that could communicate
with us at all and the promises were not kept so
I can relate. One of the things I'm curious about
that I'm like to ask you about is the research says
that you carried -- that you brought your sign language
from South America -- from centuries and centuries
ago, the Native people were all able to sign intertribally
with one another. Various tribes and nations could
all communicate with one another and understood
each other, and Deaf people have received this gift
from you. Our signs that we have that we cherish
and we value -- we are very proud of our sign language,
and we pass that on, and sometimes we fight to keep
the integrity of our language. Our visual gestural
language, I'm wondering about you. Where did you
lose it? What happened? You invented the sign language,
and you passed it on until, what, 1910, 1920? And
it's like all gone from your culture, and I'm wondering
why? I don't understand.
>> first,
let's back up for a second. Everyone who is here
in this session needs to go out and talk to six
people that you know and ask them to share with
another six people that it wasn't the Indians who
got a monthly check. I think somebody got mixed
up (laughter)
>> oh.
We do have some differences, as well. I get it now.
All right.
>> and,
John, I wish I knew what happened to our sign language.
History shows that our tribes, even though they
spoke different dialects and different languages
talked to each other by sign. I don't know what
happened to it. Maybe when we were put on reservations
and weren't allowed to roam any more and have contact
with other tribes, it just died away. And isn't
that sad? Because it was a wonderful gift that we
had, and if we could rekindle it today, that would
be so good for everybody, not just Indian people,
but for everyone. That's where even our Native languages
are today, as well. In my tribe there are probably
only 20 -- maybe 25 elders who still speak the language,
and they are trying desperately to share that language,
and I hope that we can hang onto that, because,
again, I think your language and our languages help
keep alive who we are. And our cultures -- the Native
culture and the Deaf culture -- hopefully we can
work together and from this meeting today we can
make our circle and our bond with one another stronger
and better for both our cultures.
>> ladies
and gentlemen, our presentation was not designed
to disseminate solutions. It was not designed to
present and preach and tell people about the glorious
majesties that we have and what we can resolve.
But just to identify the similarities that we have
amongst ourselves, and a number of the key areas
-- language, isolation, communication, education,
employment, oppression -- those that exploit us,
and those that -- the services and resources that
we are out looking for and we don't know what's
available for us. Our inability to know how to get
out of it, and at the same time to hang on and to
cherish these things so we can function independently
and still maintain and preserve our culture. We
don't want to be changed. Our presentation this
morning was to sometime late your thinking, because
this afternoon you are going to have an opportunity
to hear from the professionals that are on the agenda.
People like Tupper that can talk about language
and cultures. I mean, he has lived all those. He
lives it every day. We can't speak on that because
we don't live it every day. I'm not Native but he
is and so are the other speakers on the agenda this
afternoon. So we have a great wealth of information.
It's right here, and we hope we can stimulate your
thinking enough so when all of you come to the presentations
this afternoon that you be chock full of questions
and be able to hear and solve some of the problems
we have talked about and come up with strategies
to help our communities success not just Deaf culture
but Native cultures as well and for American Indian
and Alaskan Native cultures as well, and we want
to give much expression of appreciation for all
of you today. Thank you we really appreciate it
a great deal (applause)
>> I
have three or four disks with the Native listings
on them for those of you who need it in that format
let me know.
***
(noon break) ***
4/4/01
1:35 To 3:15 (Part 2)
"Serving Individuals
In The Deaf Native American Community"
Eugene Edwin, Tupper
Dunbar, Alan Cartwright, Mark Azure, Dick Corbridge,
John Evans, And Carleen Anderson, Presenters
>> okay.
Is everyone able to hear me or is it too loud. Why
did they hand me the mic? I'm Deaf. (laughter)
>> I'd
like to introduce Alan Cartwright. He is the director
for the Deaf and Hard of Hearing Center in Anchorage,
and he is going to be the facilitator this afternoon.
>> Thank
you. Thanks to my partner there, too. Anyway. I'd
like to start this afternoon -- by first telling
you we are going to jump in and just start swimming
and that's how we are going to learn. When I first
got to Alaska, I didn't know anything about Alaska.
Of I've been there 25 years and I don't know it
all still. So I'm asking you all to join me this
afternoon. You have had lunch. Don't fall asleep.
I'm expecting everybody to be wide awake and keep
up with me. We are going on a journey we are going
to fly. Some people say I look a little bit like
a bald eagle. Can you picture that up here? I'm
asking you to fly with me. Take a trip to Alaska.
I understand some of you have never been there.
I am sure you have read about it, dreamed of Alaska,
in fact. That's not good enough. You need to be
there and experience it. . What you read in books
just isn't enough. What you hear in stories just
isn't enough. What people tell you isn't enough.
You need to have that experience firsthand in order
to understand what Alaska is all about. So. A lot
of people hear the word Alaska, but what I'd like
to do today is I'd like to draw Alaska. I will draw
a map. I'm not a great artist. Drawing isn't my
strong point. But I'm going to use a map -- I'm
going to tell you of how I think of Alaska. First
of all the back kind of like the back of the head
is always flat. That's the easiest part (laughter)
the top of the head of Alaska goes like this, kind
of the forehead, can you picture it? . A nose. Did
you know Alaska had a beard? Remarkable. Alaska.
Right? That looks like Alaska. Oh, what a beautiful
map. Perfect. Alaska looks like a face. So now let's
see who is behind that face. It's bearded. You see
the nose. You see the forehead. Wearing a hat, right,
and the long braids. I'm going to introduce a real
live Alaskan for you. See some of the Alaskans in
the room have beards. Another one in the back there.
Right? Alaskans have beards: the men have beards.
The men have beards. Now, I didn't ask Trevor to
stand because he doesn't have a beard, and he's
not from Alaska anyway, he's Canadian. (laughter)
now, I have a picture of Alaska. No. No. Well, Alaska
hasn't had a lot of women. There are more and more
women coming to us now, and the numbers are pretty
even now, but traditionally Alaska has been mostly
male. What I'm going to do now is I'm going to conduct
an interview. We are going to imagine that you want
to go to Alaska, and you have never been there.
Who has never been to Alaska. Tell me some things
you know about Alaska. Alaska is cold. We hear that
a lot. What else do you hear about Alaska? You hear
there is fishing. That's another thing. Mother?
We have very long days and -- right. Right. The
sun goes round around in the sky and doesn't set.
It also goes around and around below the horizon
and is very cold. We have cold. Long days or long
nights. We have one more comment about Alaska. Oh,
bears. I'm looking for another one. Igloos. And
someone asked me if I live in an igloo all the time
I have another story once this is finished we will
go into igloos. You might be interested in how an
igloo is built. We will talk about that later. Oh,
Alaska is far, far away. Those are the three big
myths that we hear about Alaska. That it's cold,
that it's dark, and that it's very far away. .
>> and
it's those three myths that prevent the people we
meet from coming to Alaska. The pay in Alaska is
very good. But what we have is attitudinal barriers
against Alaska. First of all you have a very beautiful
state. Clearly very beautiful. People have heard
of the state of Texas? Yes. If you took two Texases,
they still wouldn't be as big as Alaska. A lot of
people think of Alaska as being five different states
in one. There are five distinct environments. There
is the forest, the glaciers, the ocean, volcanic
and they are all quite a bit of distance from each
other. I'm not going to talk about all of the towns,
but most of the communities -- we are going to talk
about the communities in Alaska. Who do you think
-- what community lives in the north of Alaska.
No, not you. Something saying something about the
North Pole? No, I'm sorry. The North Pole is way
off our map here. Somebody who doesn't know their
geography. I'm talking about in the state of Alaska.
First community I'm going to talk about is Barrow,
Alaska. You could call that the eye, in a sense.
It's kind of in the top of the head. It's not really
the place for the eye. Nome? . Here we have Kotzabue
-- that's the eye. So Barrow and Kotzabue are signed
similarly. Somebody keeps telling me -- somebody
keeps telling me the nose, the nose. That's the
nose, and right there is Nome. Working our way down
to the mouth. We don't call it -- we don't call
that city "mouth." does anybody know? Bethel is
the name of that city. We have Fairbanks, right.
Somebody spotted that one. Anchorage, correct. Juneau,
everybody knows Juneau, Juneau, Anchorage, and Fairbanks,
everybody knows those. Now, that you have got a
bit of a picture of Alaska, let's talk about the
roads. I come to Oregon, and boy it seems pretty
easy to drive from place to place. If I want to
go to Burns, I can drive there. Pretty easy to get
from place to place in Oregon. In Alaska, though,
we have got roads. That's all the roads we have
got. To get to any of these other cities you have
to fly. Okay. Are we getting a clear picture of
Alaska now? Let's talk about what kind of services
we have in the state. Deaf services tend to be center
in Juneau, Anchorage and Fairbanks. And there are
pretty much no services for the Deaf in any of these
other cities. That's a giant challenge for us. And
you get some services that -- in some of the smaller
communities near the borders in the east and the
south. Now, I'm a director of a program centered
in Anchorage, the Deaf and Hard of Hearing Center
we provide a variety of services, interpreting services,
counseling, and we have the largest center. Ask
we have clients who come to us because we are Deaf,
and I believe in providing direct service to clients,
and that's what's bringing people in our door. Dan's
office, called Deaf Community Services, is a smaller
agency. -- that was an interpreter error, I am with
Deaf Community Services, Dan's with VR: they don't
have any Deaf counselors in that program, and the
interpreting services are kind of spotty. In Juneau
-- Juneau is the state capital, and they have only
got one person providing services for the Deaf and
hard of hearing in Juneau. No interpreting services
at all. They have to bring in interpreters who usually
work in the schools. So if you fly into Juneau --
because if I fly into Juneau because I want to testify
to the legislature, there are no interpreters there.
So access is a major problem. The Alaska School
for the Deaf. The student living center which is
a group home, part of the school, is in Anchorage.
Let's talk about some of the outlying cities, let's
talk about what their situation is like. They have
no services. There is no office there at all. And
to fly someone out there for service costs a tremendous
amount of money. For you to fly from Seattle or
Portland into Anchorage is cheaper than to fly from
barrow to Fairbanks. Far cheaper. So when a Deaf
person needs services what can they do if they need
an interpreter, if they need some kind of guidance
counseling. They are on their own. That's a major
problem. We talked a little bit about isolation
this morning and about identity, and that is a giant
issue. People are very separate and very isolated.
How are we going to deal with the issue? Should
we put offices in the -- in every city? How can
we get people to come to Alaska if there are no